MCTD Warrior Blog

Stories, insights, and support for the MCTD community. Join us in sharing experiences and knowledge.

My Life

25 PHYSICAL SYMPTOMS OF CHRONIC PAIN (THAT AREN'T 'JUST' PAIN)

September was Pain Awareness Month so it is especially important right now to raise awareness, correct misconceptions, and promote education and understanding of those living with chronic pain. The original article was written by Paige Wyant. When you have a chronic pain condition, probably the most frustrating and debilitating symptom you experience is (obviously) pain. […]

Anti-phospholipid Antibody Syndrome antiphosholipid syndrome Asthma autoimmune diseases Chronic fatigue chronic illness chronic inflammatory demylinating myelopathy chronic pain Demylinating Myelopathy Depression disability dynamic disability Fibromyalgia hemiplegic migraine invisible disabilities Invisible illness Lupus Mental health Migraines Mixed Connective Tissue Disease myalgic encephalomyelitis pericarditis PERIPHERAL NEUROPATHY Polymyositis raynaud's phenomenon Retinal vasculitis Rheumatoid Arthritis sciatica Scleroderma stiff person syndrome
My health

HOW TO EXPLAIN LUPUS TO PEOPLE WITH FUNCTIONING IMMUNE SYSTEMS.

Long time no post! Hello good people! I hope you've been keeping well. Let's start off this Lupus awareness month with this article borrowed from Lisa Walters. A question I get asked a dizzying amount is, “But what is lupus, Lisa?” Followed sometimes by “and how does it affect you?” It’s not like I go […]

autoimmune diseases chronic illness chronic pain disability dynamic disability health invisible disabilities Lupus Mental health Systemic Lupus Erythematosus
My health

24 THINGS PEOPLE WITH ARTHRITIS WANT YOU TO LEARN ON WORLD ARTHRITIS DAY.

October 12th was World Arthritis Day, so it is especially important right now to raise awareness, correct misconceptions, and promote education and understanding of those living with arthritis. (Though I'm a month late, it's never too late to spread the word). The original article was written by Paige Wyant. Although arthritis is commonly thought of […]

Anti-phospholipid Antibody Syndrome antiphosholipid syndrome APS Asthma autoimmune diseases Chronic fatigue chronic illness chronic inflammatory demylinating myelopathy chronic pain Demylinating Myelopathy Depression dynamic disability Fibromyalgia hemiplegic migraine invisible disabilities Invisible illness Lupus Mental health Migraines Mixed Connective Tissue Disease myalgic encephalomyelitis Neuropathy PERIPHERAL NEUROPATHY Polymyositis raynaud's phenomenon Retinal vasculitis Rheumatoid Arthritis sciatica stiff person syndrome Systemic Lupus Erythematosus
My health

COMMON PAIN MYTHS AND MISCONCEPTIONS.

By Wendy Magnoli, Ph.D., Licensed Psychologist, Dean Stroud Spine and Pain Institute at Shepherd Center. We've seen tremendous progress in pain and its management over the past several years. However, there are still a lot of myths and misconceptions out there. Here are the top 10 myths I hear most frequently: 1. If you cannot find the […]

alopecia antiphosholipid syndrome APS Asthma autoimmune diseases Chronic fatigue chronic illness chronic inflammatory demylinating myelopathy chronic pain Demylinating Myelopathy Depression disability dynamic disability Fibromyalgia hemiplegic migraine invisible disabilities Invisible illness Lupus Mental health Migraines Mixed Connective Tissue Disease myalgic encephalomyelitis PERIPHERAL NEUROPATHY Polymyositis raynaud's phenomenon Retinal vasculitis Rheumatoid Arthritis sciatica stiff person syndrome Systemic Lupus Erythematosus warfarin
My health

THE 21 WORST PARTS OF HAVING MULTIPLE CHRONIC ILLNESSES.

As someone juggling 10 chronic conditions, I recently came across this post and could relate to every single point, so I thought I'd share it here. The original was written by Paige Wyant Living with one chronic illness is challenging enough. There are of course the physical symptoms of your disease to deal with, but […]

Anti-phospholipid Antibody Syndrome antiphosholipid syndrome Asthma autoimmune diseases Chronic fatigue chronic illness chronic inflammatory demylinating myelopathy chronic pain Demylinating Myelopathy Depression dynamic disability Fibromyalgia hemiplegic migraine invisible disabilities Invisible illness Lupus Mental health Migraines Mixed Connective Tissue Disease myalgic encephalomyelitis PERIPHERAL NEUROPATHY Polymyositis raynaud's phenomenon Retinal vasculitis Rheumatoid Arthritis sciatica stiff person syndrome Systemic Lupus Erythematosus warfarin
My health

WHAT DISABILITY PRIDE MONTH MEANS TO ME.

July is Disability Pride Month, and I would like to start by first sharing with you the meanings behind the parts of the Disability Pride flag! It was created by Ann MaGill, with the input of other Disability activists. Flags can raise awareness and are a symbol of solidarity, pride, and acceptance, and the Disability […]

Anti-phospholipid Antibody Syndrome antiphosholipid syndrome Asthma autoimmune diseases Chronic fatigue chronic illness chronic inflammatory demylinating myelopathy chronic pain Demylinating Myelopathy Depression disability dynamic disability Fibromyalgia invisible disabilities Invisible illness Lupus Mental health Mixed Connective Tissue Disease myalgic encephalomyelitis Polymyositis Rheumatoid Arthritis sciatica stiff person syndrome Systemic Lupus Erythematosus
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