MCTD Warrior Blog

Stories, insights, and support for the MCTD community. Join us in sharing experiences and knowledge.

My health

MY INVISIBLE PROJECT.

Hallo Halloooooo…. It's been a while since I was last on here. I hope you have all been keeping safe and well. I have decided to participate in the #MyInvisibleProject (which focuses on making people aware of symptoms and conditions which may not be visible to other people) to highlight invisible illnesses. It also aims […]

Anti-phospholipid Antibody Syndrome Chronic fatigue chronic pain Demylinating Myelopathy Depression Fibromyalgia invisible disabilities Mental health Migraines Mixed Connective Tissue Disease Polymyositis Rheumatoid Arthritis stiff person syndrome Systemic Lupus Erythematosus
My health

WHAT PEOPLE NEED TO UNDERSTAND ABOUT CHRONIC PAIN THIS PAIN AWARENESS MONTH.

September is Pain Awareness Month, and the running joke in the health community is that some of us are extremely aware of pain. For many people with medical conditions, chronic pain is a constant, day-to-day companion. It never seems to go unfelt or unnoticed, except to passers-by who often see laughter, smiles and energy, NOT […]

chronic illness chronic pain
My health

PAIN!…..OH CHRONIC PAIN!

 I don't know what you imagine when you hear of chronic pain. Per WebMd, it is “pain lasting more than 12 weeks”. To me, it is a pain so sharp it leaves you writhing, a pain so severe all you want to do is curl up in a ball and cry, a pain so […]

autoimmune diseases chronic illness Fibromyalgia Lupus Neuropathy pericarditis raynaud's phenomenon Rheumatoid Arthritis sciatica
My health

BORN TO SUFFER……

First, I would like to thank you all for the amazing feedback I got on the piece about depression Mental health and Lupus. This piece further affirmed to me that we all silently suffer with mental health challenges. Being one of those who find it really hard to open up to people, if you cannot seek […]

Anti-phospholipid Antibody Syndrome Chronic fatigue chronic illness chronic pain Demylinating Myelopathy Depression Fibromyalgia Lupus Mental health Neuropathy Rheumatoid Arthritis
My health

MENTAL HEALTH AND LUPUS.

It has been a long, long time since I last wrote. There are several reasons for that, actually, one, writer’s block – at some point, I just could not write a thing, but it’s lifting now, so hopefully, better, clearer days ahead. Two, procrastination – I know you all know and understand this one; postponing […]

chronic illness Depression Mental health Systemic Lupus Erythematosus
My health

LIVING WITH APS…..

“You are having a stroke.” Those were my neurologist’s words as he looked back and forth at the MRI then at me and at the MRI again. He said that he could not believe I was standing in front of him instead of having a full-on stroke at that moment. He was looking at huge […]

Anti-phospholipid Antibody Syndrome autoimmune diseases chronic illness Systemic Lupus Erythematosus warfarin
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