MCTD Warrior Blog

Stories, insights, and support for the MCTD community. Join us in sharing experiences and knowledge.

My health

LET US TALK MATTERS GUILT.

Let’s talk a little bit about guilt. The guilt brought on by Lupus and any other chronic condition. The feeling that comes from within you because you are no longer the same person, no longer capable of being carefree, no longer living your life. It’s a constant battle to keep up the smiling and pretend […]

Anti-phospholipid Antibody Syndrome autoimmune diseases Chronic fatigue chronic illness chronic inflammatory demylinating myelopathy chronic pain Demylinating Myelopathy dynamic disability Fibromyalgia hemiplegic migraine invisible disabilities Invisible illness Mental health Mixed Connective Tissue Disease PERIPHERAL NEUROPATHY Polymyositis raynaud's phenomenon Rheumatoid Arthritis stiff person syndrome Systemic Lupus Erythematosus
My health

SUFFERING THE SILENCE!

There is a stigma, a certain kind of shame associated with having an invisible disease, having a condition people cannot see, one that most people cannot understand, being unable to explain it because you lack the words to make someone see it from your point of view. Trying to hide a “weakness” that causes physical, […]

Anti-phospholipid Antibody Syndrome Asthma autoimmune diseases chronic illness Demylinating Myelopathy Fibromyalgia Lupus Mixed Connective Tissue Disease Neuropathy Polymyositis raynaud's phenomenon Retinal vasculitis Rheumatoid Arthritis SufferingTheSilence Systemic Lupus Erythematosus
Uncategorized

THE SPOON THEORY.

The Spoon Theory by Christine Miserandino.My best friend and I were in the diner, talking. As usual, it was very late and we were eating French fries with gravy. Like normal girls our age, we spent a lot of time in the diner while in college, and most of the time we spent talking about […]

My health

OPEN LETTER TO FAMILY & FRIENDS.

P.S. This is quite a long post so bear with me but I believe it will offer insight and a better understanding. My illness is a difficult one to understand, even for me. Many of the problems it causes are invisible and difficult to anticipate. I need you to understand that my life always is […]

autoimmune diseases chronic illness Systemic Lupus Erythematosus
My Life

WHAT IS LUPUS?

Ask the medical experts and they will tell you that it is an autoimmune disease, a condition in which something goes wrong with the body’s immune system – which is supposed to fight off viruses, bacteria, and germs – causing it to attack healthy tissue resulting in inflammation and damage in different organs of the […]

Africa bacteria erythematosus Lupus rash symptoms of lupus virus
My Life

AUTOIMMUNE DISEASES EXPLAINED.

It is a cold, miserable morning here in Nairobi as I struggle through the creaking joints and inflamed back to give a short account on autoimmune diseases. I have lived and struggled with multiple autoimmune diseases since I was 13 and no amount of layman terms can adequately explain them. So, forgive me just this […]

Addison’s antibodie autoimmune chronic Graves’ disease Hashimoto immunosuppressive Inflammatory bowel diseases Pernicious anemia Psoriasis Reactive arthriti Rheumatoid Arthritis Scleroderma Sjögren’s syndrome symptoms of lupus Systemic Lupus Erythematosus Type 1 diabetes Vitiligo
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